Senior Member
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Join Date: Feb 2010
Posts: 1,215
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Senior Member
Join Date: Feb 2010
Posts: 1,215
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Annie,
Certainly, no offense taken. I am still reeling with the realization that for all that time I was thinking, "If only I could get a positive antibodies test, things would be settled"--and then I hear stories of people like you who did test positive, and somehow that wasn't enough to make the doctors acknowledge it.
I really feel like I dodged a missle. I came in with a normalish SFEMG, no antibodies, atypical symptoms, and a weird gait that the MG doctor had never seen before, though he's seen 800 MG patients. Looking back, it seems almost like a sure thing that I would have been diagnosed as psychogenic.
My point (wait, I think I have a point...) is that I realize that the care I've received is not normal.
Now if I could only get my neurologist to call me back so I can start getting treated...but realizing how unusual the quality of my care has been so far makes me more patient.
I hope you can get a little relief, even if it's just temporary. Today was warmer than freezing for the first time in I don't know how long--I stepped outside into the sun and realized how much I've missed it. Let's hear it for springtimes, both meteorological and emotional.
Abby
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