Originally Posted by finz

Mycah.....Did your new PM specifically say that you DO NOT have RSD ? Or did she just not include it in her write up ?

Some medical professionals use the term chronic pain syndrome to incorporate other distinct disease/syndromes like chronic myofascial pain, tension myositis syndrome, neuralgis, fibromyalgia, and RSD (and, of course, RSD's new official name is CRPS) All of those issues ARE chronic pain issues, so the CPS title still fits, although often CPS carries the connotation that psychological factors can CAUSE the CPS, rather than being the result of the stress of chronic pain, so I'm not a big fan of the term CPS.

Unless your PM said that the dx is RSD is not correct, I would DEFINITELY talk about/write about the RSD in your appeal. As others have already written, it's not just about having the dx of RSD (some people with RSD are able to continue to work......although I find that difficult to imagine, but everyone's pain and tolerance is different) it's about how the RSD affects you.....severe pain, side effects of the meds that you take for it, having to elevate extremeties, needing to lay down frequently, suffering confusion or 'brain fog' because of pain/meds/lack of sleep, being dependent on others to do errands, shop for your groceries, prepare meals, transportation, etc.

It sounds like your PM did not have a discussion with you that RSD is NOT part of your problem. It sounds more like an oversight in her documentation or her belief that CPS covered it all.

You could always call the PM to be sure if there is some doubt in your mind. You could ask for an updated report, but I wouldn't think that was necessary to make your case. You have the RSD documentation in your records. The focus of your most recent PM visit was the worsening MRI results and the docs notes reflect that.