Quote:
Originally Posted by daisy.girl
Thanks....I did just that, sent a simple letter via fax, and my neurologist agreed to wave my co-pay portion of the infusion. I guess sometimes we just have to ask.
My first infusion took 4 sticks, and I ended up having the entire infusion through a small butterfly needle. I did get a head pain on the left front area of my head, I had a quick heart palpatation, and felt nausea....BUT all in all it was better than I thought. About 3-4 after the infusion, I had a very runny nose and congestion. Not sure if it had anything to do with the Tysabri or just a cold. Also, I am noticing small brusies on my arm and leg. Anyone know if this could be from the TY??
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Congrats on your quick thinking AND the co-pay win!
FYI: The infusions definitely get easier. I thought it was just me, but the more time I spend in chat rooms and on boards the more I see we seem to share this experience. I used to get tired and achy afterwards, but this diminished rapidly. I'm on month 8 now, and I'm hardly phased at all (though I do pamper myself for the 36 hours following!)
I have never seen anyone mention small bruises following infusion (except at IV site) but perhaps someone else can answer to that.
All my best!