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Old 02-19-2011, 04:22 PM
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default pharma bought him right away

Quote:
Originally Posted by RLSmi View Post
I agree, Lindy; very interesting but also very depressing.

What angers me, especially, is the reported agreements the Obama administration made with big pharma when negotiating over whether they (pharma) would not oppose the health care legislation, the Affordable Care Act passed last year. Alas, the very existence of that act now appears endangered by politicians feverishly slashing at it and anything else that the current US administration is attempting to accomplish. I wonder how much smaller the federal deficit would be if pharma were paying their fair share of taxes rather than getting huge R&D tax write-offs for enormously inflated "estimated costs" of what developing drugs and vaccines really are.

Too political, Chemar?

Robert
not for me this is life and death, but moderators rule. there is a difference between responsible discussion and being offensive. i can't picture you being offensive and this is a free country, tho not for long at this rate.

i just wanted to add that selling out to pharma for not very much money, which means it was less than a trillion these days...not even high number in the billions seals a deal for over a ? year period. I can't recall the number but pharma is safe. No imports if i recall. And support for the health bill? legislators are actually hiding.

But mostly I recall that it was one of the first things he did upon entering office.

And what do we have to show for it? side effects and recall warnings, lawsuits - everyone making money as the middle class and the sick both die.

That's not freedom.

so what about non profit pharmas? there was interest in the concept at BIO last year. i would even be willing to try to present the idea there if someone needs a patient on a panel about it. of course i'm not the expert in finance ..hahaa! and my speech is more like utterances mixed with some lucidity. i can still read and the mic does wonders. i've got so many reasons to do it. peg are you up for this?

who knows how to start up a pharma non profit? Debi Brooks that would be you but we can't pay you....lol. is this even in the realm of being possible? we would find out who is serious about curing and who just wants the money and the prestige. i'd work till my last breath to be involved in pd research directly.

ok i know it's a pipe dream. but would it work instead of trying to protest when we can't talk or walk very well. i'm afraid we don't look too intimidating. perhaps the NFL can lend us all their players - they could carry us. i like that picture; i'll take a steeler.

it would take something that unusual to get any money or mileage out of it. we don't prefer to be carried but if we must it needs to be by those with means, not the very people who are struggling.

It takes a steeler to get me there. One who is volunteering to carry me.

any other ideas to attract attention ?

fast tracking from the fda was after years of delaying duodopa so i''m not sure what fast tracking means. i know some people in Birmingham are moving right along and getting good results. but that doesn't happen enough [FDA consultations] There are always 'conflicts of interest'/ they count when they are from patients. Perry and others consulted about duodopa for solvay but it's been sold.

as for action:

PAN represents us at the NIH and FDA and would possibly support such a scenario as big guys carrying sick people. But i think the idea of becoming pharmas is one to start today if anyone has any vision at all of how this could happen with fewer meetings, less paperwork, online, and just start raising money. I think people at BIO, which is in DC this year, would be interested in investing. Amy Comstock Ric is very open minded, but is restricted due to the nature of PANs legal status. some people at BIO are just walking around looking for places to invest.

ok i'm dreaming now. thank God i can still do that.
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paula

"Time is not neutral for those who have pd or for those who will get it."
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