Quote:
Originally Posted by brohar
I wanted to check back into the thread i started and give a general update and ask some questions. So since my last post not a whole lot has changed although I think ive possibly met some doctors that can help. At this point im pretty sure I have something more than just a trapped nerve or injuy, but i can hope.
A few weeks ago I had several good days of just light tingling, I got excited and tried to shoot basketball by myself for 10 minutes. While doing so, i felt great and my feet didnt hurt while doing so. Well within a couple hours my feet, ankles, legs had random hot sensations, pin/needles, vibrations. Pretty uncomfortable, not screamly painful but enough to really bother me. Also for up to a week after that my feet were more painful, and only calmed down a couple days ago.
So for you other PN suffers is it common that you feel fine when you are on your feet, being active, and it doesnt hurt until after?
Ive had more blood work done by a Rhuemy and a new Neurologist, I'm also supposed to get the dreaded brain MRI to rule out MS. I REALLY hope that is not the case... Lately Ive been looking at this possible DX called Benign fasciculation syndrome. Other than fasciculation its been known to result in nerve pain, exercise intolerance, fatigue, etc. It also often presents itself during times of overexertionand mental stress, both of what i was experiencing when this all started.
I've dropped off the Gabapentin after a month, 900mg a day wasnt doing much except making me spacey. I started Amitrityline, hoping that helps with pain and depression.
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you are taking? If used for Pn symptoms it is given at a much less amount than what is needed for Depression. I am on 30mg. at bedtime.......best sleep aid I ever took! Is helping with my breakthrough sensations, but I am also on 900mg. Gabby. I was thinking of asking Doc to up Amitrit. and decrease Gabby. I also have muscle fasciculations, had them non-stop about a year ago, now just a few a day. The more I read about it and after reading my PN sister, Rosethorne has fasciculations also (we have almost identical symptoms), it makes me suspect Benign Muscle Fasciculation syndrome is much more than muscle fasciculations alone.
I would be interested to know if it is common for PN patients to also have muscle fasciculations.........
Good luck with your MRI.....I had 3 of them, along with a spinal tap to outrule MS.
The best advice I can give you is to be thankful for everything that is ruled out, even though you would like a diagnosis, look at it in the opposite way, at what you don't have, it took me a while to learn to look at it that way, but it sure helps ones mental stability.