Hi, I'm in Eaton County, Michigan. I too would be interested in a "support" group. Also, have you had any luck finding a good doctor in Mid-Michigan? I am starting to question my doctor's ability in treating my problems. I am either one of the unlucky ones where every surgery goes wrong or he just doesn't know what he is doing. It almost seems that it's a "guessing" game or trial and error. I feel that they aren't treating me as an individual, but treating me as following an outline in the text books.

It hard to talk to others that aren't suffering from this. I get their sympathy, but sometimes I think they don't fully understand or just get sick of hearing me "complain" that it's a "yes dear" response. I love my husband dearly, and I know there is no question about his love for me, but sometimes when he hugs me and if it hurts, I feel bad about the cringing, the screaming in pain. I see the hurt in his eyes, the pity in his eyes and it is just sad. I guess talking about this with others will help keep this disease from taking control of my life. Maybe if I "vent" or learn about this from people who are suffering like me, I can talk about other things with my family.