nikmcjo, Its rsd kitti my name is Karen I wanted to say welcome and hi, when I read your message I felt like it was me.I have the same with water,wind,and
I didnt sleep under the sheets intil a year ago I spent on top of my bed for almost 3 yrs. I couldnt do the water when I was going to phyiscal therpy and it made to orse for me to. I pushed it through the pain day after day for 1 1/2 twodifferent places and nothing except it got worse so the dr made me stop and I havent gone back but when I take my bath because I cant stand because I still have my cast on plus the shower I cant handle the water spraying on me. But everyday I take my bath I hold my bath and Im purple up initil the middle of my chest now I motice its bad but I have to do something Im not going to give up somedays I want to but I dont because of my son.So I understand total and Im scared is not me I worked for hospic Im not the one that needs help I dont have any right now but I need it. Im doing the best I can day to day mostly I cant get out of bed into my wheelchair. I need to push and push and find things that feel good on me its hard but Im going to talk to my dr about what Brokenwings said about the injection because I have had the different injections stemaltor and the mophin pump and it didnt work for me I have scar tissue problems but I will try anything. I will let everyone know what happens on Thurs when I see my pain specialist for my meds. I wake up every couple of hours crying at night from the burning on the bottom of my feet and other places but I will let all of you guys know wht happens but Keep going and keep trying we are in this together Brokenwings have made me feel like I have people that cares especially Brokenwings. Email me anytime. Keep in touch Take Care best wishes to you. Gentle Hugs Karen Im sorry I have to go and get some sleep. And say good bye to my son for school.