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Old 02-23-2011, 08:15 AM
Sheltiemom18 Sheltiemom18 is offline
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Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
Sheltiemom18 Sheltiemom18 is offline
Member
 
Join Date: Jul 2010
Location: Cleveland, Ohio suburb
Posts: 270
10 yr Member
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Back in July of 2010 when still dealing with pretty much constant overall burning non-length dependent small fiber neuropathy that began in January 2010, I saw the title of this thread and said, "Yeah, right."

Now it's February of 2011. And there's been no more burning since sometime in the fall, just some residual skin sensitivity which means still not being able to wear certain clothing (fabrics).

The neuropathy is still there but to a much lesser degree. I've been told the cause of mine is Sjogren's Syndrome.

So glad I found this forum and decided to go for the recommended supplements (thanks to MrsD's posts) for these reasons:

1. Bad reactions to neurontin and Lyrica; and

2. MrsD knows what she's talking about.

As Sjogren's is incurable, the neuropathy will probably always be there to some extent. There's dizziness, a little loss of balance, etc. and a lot of photosensitivity (from Sjogren's), but overall doing so very much better. Just keeping my fingers crossed and continuing the supplements.

Sheltiemom18
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"Thanks for this!" says:
glenntaj (02-23-2011), mrsD (02-23-2011), Nervous (02-23-2011)