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Old 02-23-2011, 09:32 AM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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I think it's important to take a step back and identify what has been done so far.

First, what tests were done to confirm you had MG? Looking at a CT of your thymus is not enough, nor is a clinical exam.

Second, MG is all about FATIGABLE weakness, not FIXED weakness. Weakness that comes and goes is more than likely MG.

Now, about CMT. CMT is not diagnosed by symptoms alone either. It would be highly unlikely that many MGers have CMT too. You have to really understand the unique characteristics of each disease in order to understand the differences. And there are definable differences.

http://www.cmtausa.org/index.php?opt...d=66&Itemid=43

In CMT, you can also have genetic testing done.

Peripheral weakness can be caused by many things, as can a more one-sided weakness. Some people with MG have a dominantly weak side. Peripheral nerve problems can be caused by things like a B12 deficiency or a full blown disease state.

Leave all of this up to professionals to ferret out. Write down what exactly your daily symptoms are. Get a 2nd opinion on the MG, if it helps. And get your medical records so that you can FACTUALLY figure out what is going on. Guessing doesn't do you any good. In fact, it may simply contribute to stress and make things worse.

I hope you will get opinions from a couple of doctors. Start with the MG diagnosis, get someone to explain it and go from there. The important thing is to definitively define what is going on with your body, get help for it and do the best you can at living with it.

Annie
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