Hi Sarah,
I know the feeling you are experiencing as if my toes are super glued, I have pins and needles and pain going from my toes to the top of my legs as well as my head and hands and other areas. My dx is probable small fibre peripheral neuropathy, my first neuro was useless an am now seeing a new female neurologist who is lovely who is doing more tests.
Neuro Talk is great and the people are lovely and you will find this site very useful.
Good Luck.