Quote:
Originally Posted by byates
My daughter has full body RSD. She is 18yrs old. It has taken us 10 yrs to get a diagnoses. The rsd is now everywhere. We went to Dr Kirkpatrick in Tampa Fl. He recommended the 3 day hose dose Ketamine treatment. She is sheduled to do the treatment next month. Has anyone had the treatment and if so how good of results did you get and how long did they last:
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Dear Byates,
I have done the inpatient 5 day 3x's w/boosters I have never heard of the "3 day hose dose", but things do change . The relieve I got from the ketamine treatments did help with many symtoms of RSD including pain,especially the spread,the sleeping,fatigue etc. But this is a very serious drug and I feel it's not cracked up to what some doctors say. With that said I would really do a lot of advocation for your daughter. The reason I say this is you stated she has had symtoms for 10 years that's a long time. Most RSD Specialist will say, which I'm sure you have heard, early intervention is key. To start ketamine on a patient who presents symtoms for 10 years I would get a second and maybe even third opinion.
I did all of my treatments at the Hospital for Special Surgery in NYC with Dr. Daniel I. Richman and did my boosters with Dr. Schwartzman in PA. Dr. Richman is a smart, smart guy very nice and will give you a straight answer. Also insurance is an issue with ketamine, I was extremely lucky my insurance company did pay each time. The only thing I paid for was for the daily visits of my doctor for the 5 day stay, which was cheap compared to the whole bill believe me. He would come 3 - 4 times a day to check me, talk to me, bring fellows who are in training to see and talk to me. It was a unique experiecne and yes overall did do a good job. But it's not easy it was tough on my body, but others it's not. Because of the issue with the insurance you don't want to make decisions quickly because most won't pay for it and the cost as you know is very high.
My treatment spread out from 2005 - 2007, today I am able to work PT after being home for 5 years, I never missed working so much, I do go to the gym 3x's a week, take very little meds. and live a realitivly normal life. I still have days but at the end of the day it worked, for me.
I wish you and your daughter the best please just be very carefull and take your time choosing the proper treatment, ketamine is done many, many ways, and the proper doctor. I also have children of similar age a son 20 and a 16 year old daughter.
Please feel free to ask any questions you may have.
Gabbycakes