went to neurologist today and he thinks i may have small fiber neuropathy. he had a patient a year ago with the same symptoms as i and he sent her to a sfn specialist in rochester. he now has a list of things that were tested on her for her dx. today i had tons of blood work drawn: cbc with diff. with plat., sedimentation rate, complete metabolic panel, vitamin b12, folic acid, 25 OH vitamin d, thyroid antibody panel, lyme disease, ACE level, ANA, serum prot. electropharesis, immunofixation elect., anti RNP, anti SSA and anti SSB, serum immunoglobulin ? fractions (can't read that one too well). i was tested last summer for lyme disease. i had the classic bulls eye rash on my shoulder and full joint pain making it difficult to walk. i was given the antibiotics for it and it cleared all that up. problem is i didn't take the lyme test until everything was already cleared up, oops. i'll repost when i find the results of the blood work. he also ordered emg's for both legs. i already had both arms and they look good. he said depending on what the blood work and emg's show he may order more tests from his list. finally got a doctor who listens. i'm not liking what i have read online about small fiber neuropathy. it's basically pain control. will i ever be able to do the things that i used to, like work as a nurse, do my crafts or even make supper without having someone else have to finish it for me? till then i guess the mask on my face, stiffness, numbness and incredible ache in muscles are going to be around for awhile.