I've had RSD for 3 1/2 years. I had to have 2 nerve releases in my left arm. But after the surgery, I wasn't healing . The pain was worse. So, the surgeon thought right away that it could of been RSD. But was not sure but sent me to a pain specialist that specialized in RSD. He said that I had it. I had a nerve block that day, followed by a month and half of nerve blocks. HE told me he could keep doing this but it would be expense for me. So, my next thing was SCS. I had the trail which worked and little. So, we went ahead with the SCS. I worked for the first month a little then I fell and it didn't work so well. But, it was still in the right place by what x-rays showed. I'm on meds, too. I go in every two week too get reprogrammed because that the pain is extremely bad. But, it does not work. My left arm is contacting. So, we try phyical therapy, which cause more trouble for me. My right arm went numb and I was have the burning pain and the same problems as the left. Then I could not move my left hand, arm at all. So, we stop that. I try my on exercise with my left arm/hand but it still contracts. I am in the process on changing doctors because this one will come to my town once a week. But, even my family doctor sees that my doctor now is not doing anything. So, we are changing. I do have a wonderful husband that helps me everyday. He is so wonderful. I know it is not only me going though this but also him too.
His life changed too. But we make the most of it. Annick03