Quote:
Originally Posted by dogsrn
Hello Patti,
I am very sorry to hear your ordeal..I am a new member to this site and my beautiful 19 yrs old daughter has RSD in her left upper and lower extremity and now in her head..it is taking control over her, unbearable..so i truly understand your pain..we all will pray for each other..
love,
dogsrn
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Dogsn,
Oh my, 19 is too young to deal with this "monster". I understand that there are many other diseases/illnesses that strike our children, but this one is truly a monster. One never knows how they are going to feel minute by minute. One second, things are fine - next thing you know, the pain starts, the craziness of the "cold water drips", the looks on the faces of the doctors when you are trying to explain things. I think the lack of understanding this "monster" is what makes it so hard. Prayers and gentle hugs to you and your family. Let your daughter know that there are people who are suffering just like her and truly understand her pain. It's not just in her head - it's real, and we are here for you and her.
Hugs,
Patti