Quote:
Originally Posted by Peony
Sinemet didn't do much for my tremor & did give me bad dystonia only a few months after starting, so now my MDS has me starting Mirapex. I have much trepidation about this, since I've read several bad experiences here & on NPF Forums & heard them from people in my support group. Anyone want to share advice and/or good experiences (or otherwise), esp. with severe tremor? Thanks.
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I had to try Mirapex three times to be able to take it. Each time I cut back on dosage & the third time worked. Over the years, I gradually increased the dosage. I found it to be really helpful & took it about 8 years. It seemed to help with my tremor.
It had side effects that were not pleasant---edema, sleepiness, & toward the last year or two---hallucinations/delusions. I had to stop taking it because of the hallucinations. I'm now taking Sinemet (carbidopa/levodopa) but I've had trouble with it. I just cannot find the right dosage---if I take too much, I have a lot of dystonia in arm & leg. By too much, I'm talking about 1/4 of a tablet!! My tremor continues & I haven't found anything to relieve that.
I guess my main point is to experiment with the dosage & especially when starting (any of the meds), consider trying a small dose (smaller than is recommended). You can always increase.
Good luck! Mari