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I know that I sound really angry and I really don't mean to. It's just that I have worked very hard to hold it together in my life and tried very hard to take care of myself.
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You have every right to be angry. Many in your situation feel anger because knowledge about problems with gluten has been known for several decades and has been increasing in incidence. But the doctors aren't even thinking it. The same is happening with Lyme disease. When doctors don't know the cause of something they are quick to dismiss it as mental - all in your head (often said with chronic fatigue, IBS, and fibromyalgia as well.)
Growing from the ruins and fertilized by the anger and compassion for others are people who are trying to get the word out. There is Natelson who wrote "Your Symptoms are Real" , Wolfson with "
It's Not Mental" this wonderful website called "
The Gluten File" and counteless of sites around the Internet on gluten and casein-free cooking.