Thanks for those studies. I hope in time when more is known about the condition there will be better results in pain control. I think such a hard part of this is we all respond different to treatment. That is why the 1 size fits all treatment I think is not good. Even if there is not a cure I too have heard of treatments giving people a better quality of life and pain control. It is about finding the right treatment though and it takes time and trial and error. That is the hard and scary part.
F micheal on a side note I give you a lot of credit and thanks with all the research you do. You should write a book.