Painman2009, I felt the same way. i was really angry. My pain Dr, anesthesiologist told me that the best remission is if it is caught early on because once the RSD changes the brain/sympathetic response its too late for complete remission. He told me that even if they come up with a cure, it would not help me because mine is chronic. My husband doesnt buy it. Now he believes that warm pool water or desensatizing will help with skin sensativity and movement by helping rechange the sympathetic nervous system back to the way it was. Which i have found has really helped me. And research with biofeedback and relaxation helps keep the sympathetic nervous system going crazy. I find it hard to believe that, at least in Pa, although RSD is a diagnosis and there is physical symptoms that it is not recognized by SSD. I guess to have current Research and be recognized by SSD we have to come together, like RSDS.org(think thats it) , and unite as a large group.
momof4