Wow This thread has really hit my last nerve. I agree totally with the initial post and thank all of you for your great responses. I could go on endlessly with my thoughts, but will only say that I will fight this Monster-Help others afflicted via my Support Group-raise as much money as I can to raise awereness and for research and remain upset EVERY day at the ignorance of this disease. I agree and wish that I could find a way for ALL of us and all RSD orginazations to band together and unite someway to get the help that we all deserve!!!! I will stop for now-Fondly-Carol