There is a type of myasthenia called limb-girdle= DOK7.

The way you describe your walking sounds as if this might be your diagnosis.

This is important, because there is pretty effective treatment for it.

Maybe if they can't send you to Mayo, they could at least send some tests?

Or they could try treating you with Ephedrine/ Albuterol.

Could you give more details of your symptoms?

alice