Quote:
Originally Posted by laurasari
I thought i posted this 2 days ago but can't find the post.
I have heard there are possible rebound effects from getting off Tysabri and i was wondering if anyone can share what i might expect.
I have been on tysabri 2 1/2 years just learned i am positive for the JC virus and my Dr wants me off. On Tues we will discuss what we do next.
I would appreciate any info you can offer. Thanks
laurie f
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Laura,
I was on Tysabri for about 2 years but stopped (because of the cost associated with the infusion and the additional lab work which totaled six figures over that time, even though I had insurance and Biogen cut the Tysabri cost down to 20% for me).
My MS has been running its natural course of increased fatigue, mobility loss, and other simple losses. BUT, those functional decreases may have nothing at all to do with being off of Tysabri. It may (as I suspect) just be the natural course of MS.
I wish that I had more concrete data for you.
I would ask your physisican about other DMD's or experimental surgical treatments (angioplasty) that that could help.
I wish you the best.
-Vic