I do not like the pulmanologist and looking for a new one. He does not answer questions and does not listen at all. My oxygen level stays acceptable, just the labor to breathe is exhausting.
The respiratory tests, he says I have COPD. He insists is from asthma. My speech therapist was here one day I was having a very hard time breathing. I would not have said a thing, I have always had it happen. She was very concerned, said I was having a,oh I forget the name when your symptoms onset. I had been holding my grandson, he is a big baby! We call him Chubba Bubba for a reason, ha. This is what made it come on.

The pulmanologist had me do the sleep study as he was convinced I have sleep apnea. I do not. The people who did the study said they saw a few things, like restless leg, but I would have to find all the things out when I saw my pulmanologist. Well, he said there was nothign else! He did not even mention the restless leg. I have to have to the records sent to my reg. dr.

I told him the breathing is onset by anything, holding something heavy for me. He referred to MG, not CMG and said this would be from muscle problem if it was like Lou gehrigs (sp?) or somethng like that.
I dont know. I just dont understand any of this. I am overwhelmed that suddenly 'I have symptoms' and they are serious. Ha. I was looked at like a looney for even havign a cane.
I get so tired, add on the stress of a doctor, I am toast. I am afraid of them now. I have been yelled at, spit raspberries at, it is unbelievable. I am so use to just being sent out, now I have all this information to try and keep up with.

When my last neurologist sent the team of therapsits, I was so scared. They turned out to be so nice, kind and informative. The physical therapist came. He did not say much at first, just asked questions. Did the strength tests, etc. I was so stressed. When he was done, he said words to me i could not believe. he told me I have done amazing for what I am dealing with! liek that was not enough, he said he was not going to give me exercises! No way! He said my treatment was energy conservation and that is what he would work with me with. He said I did a great job figuring out how to walk with my cane. ..........it was all I could do not to fall on the floor and blubber...Bohoohoo, ha! Blaahhaha! I still laugh at the control I had to use to not really do that!

So much had been cut for the disability here. but your idea of having tests sent to the Mayo I will def talk to this next neurologist. I had seen her before adn she treats eveyone with dignity.

I have to say, all the help from the therapists has benefitted so much. I am not as hoarse. i was all the time. I stop now when I am tired, which is pretty regular. But i see changes and no longer feel bad our guilty about it.



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