Dear Nancy
so sorry to hear of this
I am going to also copy this post of yours to our general health and rare disorders forum in the hope that others may have some input for you
here is the link to your thread there
http://neurotalk.psychcentral.com/sh...ad.php?t=14375
you will always find a caring person to listen or give you a

here and hopefully others may also be able to give you some input on this situation