Originally Posted by momw/rsdchild

Well...6 weeks now my 15year old daughter has been in a bad RSD flare up. Now school, church or anything. She is just plain miserable. We moved last fall from Texas to Oklahoma and have made 3 trips since Christmas back to Dallas (5 hours) to see her doctor. He is great but has exhausted all he knows to do for her. She just isn't improving. He sent the paperwork to get her into a clinic in Tulsa because he felt like the long car ride did not help her after receiving ketamine treatments. We found out yesterday that they have denied her because she is a child. We can't find anyone in the state of Oklahoma to treat her. No one treats children. Now I am an intelligent person and I figure there have to be people under the age of 18 in oklahoma with RSD who need treatment. Do they all go out of state? This is just crazy! We don't know what to do! The children's hospitals don't have pain management programs and the neuros won't see her....anyone with ideas???