Sorry to hear about everything you are going through right now, Alice.

I'm 16 years old and have had RSD since I was 12 years old. Started in my left leg and has since spread to both arms and possibly my back, although Doctors aren't sure if it's definiately there as I have underlying back issues also.

I tried everything in the way of medications and procedures and nothing seemed to help and I had severe side effects from some of the medications. Eventually my doctor told my mum there was little he could do but prescribe oral Ketamine. He didn't want to because of my age but said it was the only thing that might reduce my pain.

We agreed to give it a try and I have been on it for nearly a year and half now. I don't take it every day as my doctor feared it may mess around with my hormones. I only take it when I absolutely have to.

For me, it is the only med that has had some impact. It can make my pain go from an 8 out of 10 to a 5 - not great but better than nothing.

Side effects vary for me. When I first started taking it I got really sick on it but i'm now used to it and don't have many side effects. If I do get them it tends to be when I haven't eaten much or are feeling ill and they are only minor and last a short time.

I wish they did the Ketamine infusion in the UK but they wont, especially because of my age. I feel it would really help.

Take care and I hope it helps should you try it

Alison