get up at 7 am, work 10 hours a day in an IT dept for a large company, head home, take care of house/spouse/cat. Socialize with friends, exercise by taking long walks in my little town, will volunteer at courage center (it's a new thing, I start next week assisting with weekly swimming lessons), I'm on a bowling league through work (bi-weekly madness is what THAT is) and otherwise generally experience what appears - outwardly - to be a very normal life.

I was diagnosed in 2001. Presenting symptoms were mild sensory, then Lhermitte's sign. LP and MRI confirmed and I got the diagnosis. I've had few if any symptoms since. Am not on a DMD now (was on avonex, copaxone, but quit them because of complications). Recently, I have some 'shakiness' in my hands but that seems to be remitting. Recent MRI shows no progression from last scan about 5 years ago.

It's a wacky disease. I take nothing for granted because I know how it can go, and I know it can change.

becca