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Old 02-27-2007, 10:10 PM
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Join Date: Aug 2006
Location: San Diego
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Wing42 Wing42 is offline
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Join Date: Aug 2006
Location: San Diego
Posts: 365
15 yr Member
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Quote:
Originally Posted by T Bart View Post
Billye,
Sorry to be so slow communicating. The best I can describe it as is a feeling similar to when you have the flu and your skin just seems to "hurt" or be painful to any light touch. This doesn't happen all of the time - it comes and goes.
Tom
Tom,

Welcome to this board. I hope we can help, and you us.

There is a process where nerve activity inhibits nerve activity in adjacent nerves. That phenomenon is called "lateral inhibition" ( http://www.google.com/search?hl=en&s...bition&spell=1 ). In PN, as skin receptors go numb, they fail to inhibit adjacent skin receptors. That has the effect of making the functioning receptors hypersensitive. It can get excruciating, where even the touch of a sheet on the skin is hard to tolerate.

Three things helped end that horrible period of my PN. First was exercise. I just ignored the pain and started walking and doing yoga. That has the effect of increasing blood flow and thus improving nerve function. It also forces the nerves to fire in a more or less normal fashion, which helps them function and heal. I want to be clear on one thing. Normally, one should listen to their body and not exercise "through" pain. That's not the case with PN. PN pain is a misleading degenerative symptom, not an injury symptom. I don't know how to differentiate between arthritis pain for example and PN pain. You'd have to make a judgment call for yourself with the help of a caring and knowledgeable physician. Even with an injury, there is some exercise that you can do. You cannot get or be healthy without daily exercise.

Another thing that helped was electric stimulation. I used and still use "The Rebuilder'" ( www.rebuildermedical.com), but the research is pretty good supporting the healing and pain reducing effects of other electric stimulators such as TENS or pulsed interference waves. One great thing about The Rebuilder is that the stimulation is applied in a water bath with Epsom salts as the electrolyte. Epsom salts are magnesium sulfate. Magnesium calms hyperactive nerves, and facilitates firing in sluggish nerves. Some is absorbed through the skin during the 1/2 hr. treatment session, to good effect. This provides the quickest relief for nerve pain I've found. I started sleeping through the nights about 2 weeks after starting 2/day treatments. I now use the Rebuilder about once a week as needed.

The third thing that helped was an attitude adjustment. I was chronically angry back then, ****** off at politics, drivers, rape of the environment, my son, my boss, etc., etc. It turns out that strong emotions make PN pain much worse for about three days. As I learned to let go of whatever was bothering me, get off judging everything negatively, and smell the roses, my PN improved.

I urge you to read the Stickies section above the thread listing. There is a lot of wisdom and hard-won knowledge there earned through years of suffering and experimentation and brainstorming.
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David - Idiopathic polyneuropathy since 1993
"If you trust Google more than your doctor, than maybe it's time to switch doctors" Jadelr and Cristina Cordova, "Chasing Windmills"
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