Hi,
This is KMEB - from original BT and now NT too.... that sounds so promising! I'm still hovering in the were sure you have amyloid but cant nail it down field - am now having progressive cardiomyopathy along with severe neruopathy and gastroparesis (all symtoms of course)... finally saw an amyloid "expert" last month and he did some tests - and is going to work with my GP to do more biopsies, etc....
I know they are doing and more and more research in this area - heres hoping this may be an answer for you... sending good thoughts....