Patti thank you for that feedback...... it is very informative and I have actually pointed a new member to this post because she is having issues that kind of remind me of some of the stuff you've described.

My heart is sinking as I ponder the fact that there are quite a few of us who got these implants in about the same proximity......and things were very exciting and wonderful at first.......now it seems that many of us are beginning to have issues arise and frustrations, problems......revisions....new battery because of a faulty one......

I had heard the term "HONEYMOON PERIOD" early on in my seeking out information....and now I'm beginning to comprehend fully of what that means.
I think many of us are facing the unfortunate fact that the 'Honeymoon' is 'over'......
yes, the implants are still helping us......but....not quiiiite what we expected.
And many of us are having a hard time getting decent follow-thru care......
Like what Patti describes.

And OH MY LORD if ANY of these manufacturers even THINK of stooping so low as to put a 'used' unit (one that has been explanted) in to a new patient, I would be literally SICK to my stomach!!
I would assume that any explanted pump would be considered a BIO-Hazard!
This would not only be inhumane,.......but completely ILLEGAL! ....
....right? Mark?.......input?

I'm feeling very down about all this.....I wish I could feel 'happy'.....or ...'funny'...... but I just can't right now.
I'm on the verge of looking in to disability.....and I too am wondering if I have RSD spreading......SOMEthing is not right....

We need to stick together...and work thru this.....

Totally Bummed
Rae