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Old 03-02-2011, 08:47 AM
Debbie D's Avatar
Debbie D Debbie D is offline
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Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
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Boy, I never know what kind of day I'm going to have when I wake up. Some days I have a lot of energy and my brain is cognitively okay; others I nap all day because of severe fatigue and I am in a fog.

I can be walking when my legs turn to jello; I suddenly walk like a drunk; I can get spasms at the blink of an eye. And my brain-oohhh I miss it so! I used to be able to multi task like a lunatic; now if an idea comes into my brain, if I don't write it down or record it on my phone microphone, that fast it's gone. My bladder has days when I feel like an infant, which is quite depressing. I think I have toes, because I can see them, but I can't really feel them; that was my first real indication of trouble and sent me to the neuro. It took 3 years to get a dx.

I do spend a lot of time watching TV, on the computer, or playing with my puppy. It's difficult to read, because my attention span and memory of what I've just read are not good.

I do try to work out at least 3 times/week, and try to take the pup for a walk daily if it's not slippery outside. I also take the Wii out and do exercise on that.

I have been denied once for disability, and am waiting for the final decision on appeal. I can't work due to leg instability, cognitive dysfunction and bladder issues.

I try to make lemonade out of the lemons life has given me, and it's been sweetened by the most amazing spouse on Earth. I am truly blessed.
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