Abby, I know someone here will have more info about specifics but wanted to say I got a copy of the bedside PFTs when I had the admition by the at that time neuro for suspected MG crisis. I thought wow they should get it as the number before and after I was started on mestinon where day and nite. I literally have carried this data around to new docs, neuros. The local neuro I went to as the student in hosp said you must have someone in CR, my city, incase you crisis again. When i pressed this data into this guys hands towards end of that appointment he said sorry I cant understand these tests I am a neuro. Had said he saw only some weakness in arm like MG and suggested I go to St Louis where his teacher was. At that time I was going to appointments rested and full of mestinon.

I respected him for admitting neuros dont have much understanding of breathing tests. I have always gotten the biggest support from my pulmos generally. The one at Mayo turned the tide so I started to get treated at all again in Summer 09! My current neuro is the only one who currently fights for more testing to be done so he does other tests when I see him to try to prove the point like last time a swallow test. He tho recommended a swallow test and a tensilon test before I saw this last neuro. Neither was ordered.

Anyone with breathing issues I sure recommend a good, caring pulmo who can put you in a lab where computerized breathing tests are done. Its hard data which a doc loves but it has to be a doc that can understand them.

I trust having a good pulmo for the next time I crisis than any neuro currently in my area.

Annie59