Annie, You need to go to the doctor (primary) about your hand. It does not sound normal. They need to see what it looks like. Please go in. I, again, am concerned that they are missing something with your health.

Also, I would again encourage you to find a new rheumatologist. You need someone to assess if your "myositis" is polymyositis or dermatomyositis or inclusion body myositis or something else. Everyone deserves to know exactly what is wrong with their body. There's a lot of "guessing" with you that is not helpful.

You have to tell the doctor who prescribed the steroids that you are worse. You never know what exactly is going on that is making things worse. Please contact them right away. You are on pain meds and the combo of Pred and pain meds can cause all kinds of problems.

I hope you can find the right combination of things to make you better.

Annie