Rationing energy......that is a good good phrase. I will use that if you dont mind. That is it. After reading I remembered my attempt at pool therapy several years before I went on mestinon. After the first visit in the hot therapy pool I crashed big time. The therapist was so so puzzled. She said she couldnt understand how I got worse.

I have done some calling around in years past for a PT that knows neuromuscular. I will have to try again. No luck at that time. It was strange in that none of them were willing to say they didnt really know. I know that likely came out of want to help anyway.

I know a lady back here that has a recumbant bike she likes. She said at first it was 3 minutes and that was that for sometime but now she is up to 15. I do wish I could afford equipment in my apartment. I like the bike idea and have always been interested in Pilates. Maybe sellling some old stuff will get me there someday.

Annie59