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Old 03-03-2011, 05:47 AM
gabbycakes gabbycakes is offline
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Join Date: Oct 2008
Posts: 518
15 yr Member
gabbycakes gabbycakes is offline
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Join Date: Oct 2008
Posts: 518
15 yr Member
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Quote:
Originally Posted by Jimking View Post
Sorry for the late response. My computer at home is giving me problems.

ballerina, Thanks for the info on Dr. Damian Freas in Annapolis, we'll put him on the list. It is a little bit of distance from us because we are in NOVA but still within the area somewhat! It seems it would take 2-4 years to see Dr. Robert Schwartzman. What we need is a doctor my wife can see at least once a month. Thanks again.

finz, We wont be going back to that doctor anyway. Suzy is still going to her previous doctor until she finds the right one. I will tell her again that Suzy is not interested in any invasive proceedures or gadgets, especially from a pain center calling itself non-invasive pain center run by a doctor who lives in a state 100 miles away.

Good advice Swatgen27.Well, I try to be the vocal one but many times in the past I've froze because quite frankly some of these docs don't seem to have a clue and it strikes me as odd. My wife will get vocal but it's not in her nature and she (to me) comes off to the doc as a possible mental case which gets me even more angry. She's not mental but shy with people and has been forced to become more aggressive because of the pain.

daniella, Suzy has been to 2 hospitals for treatment. Johns Hopkins and George Washington Hospital in DC. The issue with the hospitals is Suzy has been infected with RSD nearly 10 years. She is through pretty much with experiments, risky techniques etc. at least at this point in time.

gabbycakes & ballerina, I realize many people have had good results at Hopkins but ours was a nightmare. When we went to the pain center at Hopkins several years ago Suzy was not getting any help from any doctor in our area. We went to Hopkins to have a consultation with a particular doctor. Suzy was in severe agony from nearly 4 years without treatment. A nurse rudely, without saying a word, grabbed suzy's damaged arm and proceeded to wrap a blood pressure cuff around her upper arm. Big mistake. Suzy screamed in pain and pulled away. I calmly explained to the nurse Suzy has RSD and that is her bad arm and then I asked if they had a wrist cuff instead. Without a word from the nurse she stormed out of the room. A young doctor then entered the room in which I explained that Suzy can not have that cuff wrapped around her upper arm, perhaps the wrist or ankle. The young doctor then said that he will not tolerate anyone being rude to the staff and gave Suzy 10 minutes to think about getting her blood pressure done the way they want to do it. We then left. That young doctor was not the doctor we were there to see and they billed us $500 dollars in which I refused to pay and never did. All this took place within 5 minutes. Hopkins still maybe an option perhaps if it is a different doctor in a different pain department.

Thanks again everyone and have a pain free Spring!!!
Jim and Suzy,
I apologize I must of missed the post that you had been to Hopkins before. What a terrible experience.

Gabbycakes
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