Thread: Please Help
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Old 03-03-2011, 12:54 PM
EE03 EE03 is offline
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Join Date: Sep 2006
Posts: 616
15 yr Member
EE03 EE03 is offline
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Join Date: Sep 2006
Posts: 616
15 yr Member
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Quote:
Originally Posted by Mike H View Post
Hi everyone-

Here are the bullet points-

* Pain started about five months ago.
*Stabbing pain behind the eye followed by dull aches in temple and jaw.
* Visited emergency room, got cat scan, was told by ER doc pain was from new reading glasses.
* Saw Optometrist, no growths behind eye, was cleared
* Visited emergency room again, CAT SCAN was preformed, came back negative, was referred to a neurologist.
*Neurologist diagnosed me with stress headaches, was prescribed tramadol. It did nothing.

*Visited TMJ Specialist Dentist. He diagnosed me with pre-trigeminal neuralgia. He prescribed Tegretol. Tergretol took away 99% of pain.

*Had MRI with and without contrast, all came back clear.

*Saw new neurologist, confirmed diagnosis of pre-trigeminal neuralgia.

* I am am insisting on knowing how I got this.

*Currently awaiting a CTA scan on friday.

* I have become completely depressed and convinced that I am going to die from this.

*Please help me.
You won't die from this so rest easy on that note. If you haven't already done so, read through the stickies at the top of the thread. There is a lot of valuable informtion in there and a lot of good links to sites with reliable information. Personally, I haven't heard of a "pre-TN" diagnosis, but that doesn't mean anything since I'm not a medical type of person. On the plus side, at least you've gotten a diagnosis right away(early on) since it took me years to get one and I underwent a lot of useless treatment including antibiotics, steroids, and multiple scans. We all struggle with not knowing why we get this condition and the medical professionals can't tell us why we get it, so I appreciate your frustration, but you probably won't get an answer. A positive response to tegretol also indicates that the pain you're experiencing is nerve related and that helps the doctors make the diagnosis. As for the depression, we've all been there. You need time to accept the diagnosis and all that comes with it. Consider ordering a copy of the book "Striking Back" that is sold by the Trigeminal Neuralgia Asso(TNA). and I think its also available through Amazon. If you browse the threads on this board, you'll see a lot of people mentioning it and its full of great information regarding all aspects of this condition. The TNA's website is full of great information also and its another place to start getting more information. While its hard to find other people who know the pain of this condition, you're not alone on this board. There are support groups sponsored by the TNA so be sure to check and see if there are any in your area when you visit their website. I'm sure others will post their thoughts when they see your post. Take care and get information. EE
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"Thanks for this!" says:
Burntmarshmallow (03-03-2011)