Originally Posted by Patti_Christmas

No problem Rae . I made my poor husband read it as well. I skimmed it because I didn't want to "be the one that pointed out that I had that symptom" because sometimes it can go to your "mind". Besides, he needs to help advocate for me.

I am so glad once again to have found this forum. Reading what has happened to others, the good and the bad, has been helpful and served as a motivator to me to ask questions and really look and think of things.

Another doctor's appointment is scheduled for me today, I did let them know that the stim still isn't quite right. I guess I find out what happens now and the next plan of action when I get there.

In talking with my Medtronic Rep on Wednesday, I did ask him if he has ever seen or heard of anyone that has treated with Ketamine. He did say that the dangers of this would definitely not be worth a try with me, especially given the fact that every plan of action has gone wrong. He did mention something about a snail toxin (can't remember the name), but I'll be talking with my doctor about it today.

Take care everyone, and remember - it's your body and no matter how crazy the doctors look at you when you are describing your pain/symptoms, that it's their job to either fix you or refer you to someone who might be able to!