View Single Post
Old 03-04-2011, 04:51 PM
Shay1968 Shay1968 is offline
New Member
 
Join Date: Mar 2011
Posts: 1
10 yr Member
Shay1968 Shay1968 is offline
New Member
 
Join Date: Mar 2011
Posts: 1
10 yr Member
Confused Searching for others

My husband is 43 years old and was diagnosed with peripheral neuropathy about 11 years ago. It started as pins/needles and numbness in his feet..then hands and has now moved up past the elbows and knees. He has much difficulty grasping or feeling objects in his hands. Losing all muscle mass. Has drop foot, and his left ankle rolls to the side alot causing him to trip and fall.

Until a month ago, he has not had any pain with his neuropathy. That has now changed. He has become so disheartened with his physical condition that he has even conteplated sucide. He has now been diagnosed bi-polar, so we are hoping that will aid in the treatment of his depression. We really don't know what else to do.

We have been to Atlanta (Emery) and to Vanderbilt. All the doctors we have seen have been stumped. He has been tested everyway since Sunday and no one is able to diagnose the cause of his CIDP therefore, the doctors do not know how to treat him. He received 6 months of IGIV treatment, but no success. He has tried B12, Alpha Lipoic acid and Benfotiamine, Lyrica...but again no relief. He is now on Cymbalta and the dr. prescribed Neurontin. He doesn't want to take the Neurontin because he said it makes him feel fuzzy than he already does.

Any suggestions on how he can take this medicine to avoid some of the side effects. He is concerned that the CIDP is now affecting his brain and memory.

I am hoping to find others that have/are experiencing the same or similar symptoms and can give some advice.
Shay1968 is offline   Reply With QuoteReply With Quote