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Old 03-04-2011, 08:55 PM
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agate agate is offline
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Join Date: Aug 2006
Location: Wild West
Posts: 1,021
15 yr Member
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Hi Debbie D,
You can't really know how you'd have been doing if you hadn't been taking Copaxone for the last two years. That's always the problem, isn't it?

I was on Copaxone for nearly 3 years but currently I'm off it. Maybe just taking a break--a lot depends on an MRI I'll be having in December.

I don't think that going off the shots because they remind you that you're not well is a good reason to stop Copaxone, though. Your MRI has probably told the story, and it's no fun to have to accept it.

If you're still RRMS, the chances are good that Copaxone might help slow the MS down. It might help you if you have a progressive form of MS too--they just haven't tested it on those types of MS.

I'm pretty old to be taking Copaxone--they don't know much about how it affects older people (I'm 70), either, or people who've had MS as long as I have (at least 30 years). I'm not eager to put up with some of the problems Copaxone created for me but if the MRI shows that my MS has worsened since I've been off it, I'll probably go back on it.

Maybe I'm just grasping at straws, but it's better than doing nothing. I don't enjoy looking at my shrinking brain on an MRI.
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MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24
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