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Member
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Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
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Member
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
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I am sorry to hear that you have had such a rough time of things. Have you had confirmation of the small fiber neuropathy (skin biopsy), nerve conduction studies, emg? Just to be sure that is what is causing your pain.
The drug trials can take time and be frustrating. One drug may work for one person, or a combination may work for someone else. This really can be frustrating. Try everything your neurologist recommends. Be very communicative with how you feel and give it some time.
Do you have a good neurologist? If you are not certain, research and find one that specializes in Small fiber neuropathy (or peripheral neuropathy) - if possible. Have you addressed your sleep issue with your doctor. You will have increased pain when you don't have enough sleep. Perhaps you need to take something at the advice of your doctor.
More people will probably be along to comment.
I wish you well.
Mere
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