And Welcome!

Mercy! I am so sorry to be reading that you are going thru this!
How long ago did you have your permanent implant? I'm not familiar with the procedure of going thru the tailbone....hmmmm

Have you been in contact with the Reps from the manufacturer of the SCS?
They are supposed to play a big role in helping to make the SCS a success, as far as programming the electrodes, etc.....

I have much I'd like to share, but I'm on my way out the door for work, but I couldn't leave without answering to your post!
Please stick around......there are many here who will chime in

Your case does sound rather alarming and I agree with Patty on the 'legal advocate' suggestion.....this might be something you might need to check in to...... it is patient NEGLECT to leave a patient incapacitated.

One of our members here (Mark56) has attorney experience and can perhaps walk you through a few initial suggestions....

We are caring crew here, so please stick around and if we all put our heads together, I'm sure we can give you some pretty good support.

I'll check back later today Alan
Hang in there, k

Truly Caring
Rae