Member
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Join Date: Aug 2006
Location: The Left Coast
Posts: 620
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Member
Join Date: Aug 2006
Location: The Left Coast
Posts: 620
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Going off at night
Steve,
I have always wondered this and now I must ask--or maybe I have asked and forgot what you said:
Why do you go off for the night?
By my reading of the literature, nothing does a better job of producing dyskinesias and dystonias than what they call "pulsatile delivery" of Sinemet (or equivalent). "Stay on" is the watchword given me by several neuros (some of them even good doctors!).
I have stayed on as evenly as i can these twelve years, and personally I think it has helped me to mostly avoid motor complications severe enough to bother me. I now take Sinemet every three hours, around the clock if I wake up, and if I start having gaps in coverage I'm on the phone to the neuro. But that's me.
I tried klonopin after a sleep study showed I act out my dreams and don't get much REM sleep. i had a paradoxical reaction to it and was wide awake all night.
Best of everything to you,
Jaye
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