Thread: Dyskinesia
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Old 03-07-2011, 10:32 AM
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Join Date: Dec 2006
Location: Aridzona; dx'd 04/2003 @ 35
Posts: 130
15 yr Member
EmptyNest68 EmptyNest68 is offline
Member
EmptyNest68's Avatar
 
Join Date: Dec 2006
Location: Aridzona; dx'd 04/2003 @ 35
Posts: 130
15 yr Member
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Quote:
Originally Posted by lurkingforacure View Post
How did you "get off sinemet" and did you substitute anything for it? How is that going?
I didn't substitute any meds for it. At the time a high protein diet/lots of veges/little to no caffiene/lots of water combined w/exercise it was I did. The initial few weeks getting off the carbs and titrating off the sinemet were difficult. I started kicking up my exercise and movement and that really helped. Within a couple months after starting this plan i was feeling better than I had in years. My symptoms were still present but all in all, felt good. By late spring early summer I'd started adding in carbs and that actually didn't help. Summer and winter months I really slacked off So I am back on high protein/veges/lots of water/exercise. worked for me once we'll see if it works again. I know medication is in my future and some patients might think i am crazy but this works for me, and frankly, i really want to avoid dyskinesia.
PS-I haven't seen a doctor in a few years which is stupid.
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