Jaye,

Thank you for speaking up! I am one of those closet must be "on" all the time people. How in the world can stopping the drug so abruptly be beneficial for us? If anything, I think it would instead have your brain even more stressed when it is seeking something it needs and all of a sudden is cut off. This is why Steve (and others) have such a nasty time at night; your dystonia, all of it, most likely is due stopping meds.

I also am beginning to suspect from what I have read that doctors are rather arbitrarily issuing a final dose for the night. Why would anyone's doctor want their patient to essentially spend every evening in such discomfort?

I agree with you Jaye; there are many doctors who will listen to you and your needs. I have read in other forums that some neuros don't cap the levadopa intake at all.

As for me, yes I hate being dependent on meds. We vilify levadopa, when in reality it is the grossly inadequate delivery that causes the problems. If you can, try liquid Sinemet for half a day. The difference is amazing. When is the FDA going to get with it and approve Duodopa?!!

For instance, I have a two year old boy to look after, so I am certainly not going to be off all meds for 6-8 hours ovwernight. I