Originally Posted by IAM4UK

I have had CRPS for about 4 or five years, but just diagnosed 6 months ago. By the time I got diagnosed it was just about all over me. Left arm, both legs, face etc. I think I have full body but nobody can tell me for sure! Like a lot of you guys I went to many, many different doctors complaining of unbearable pain and not being able to move my joints etc. Most of the time you could tell they thought I was just faking etc. It's hard to find doctors that know anything about this disease. Even the doctor that finally diagnosed me I don't think knows a tremendous amount about it. He keeps telling me to put ice then heat on it. And from what I've read that is a big time no no! I feel for everybody going through this! It has been the worst experience of my life by far and keeps getting worse. My question to you guys is, I live in Kentucky and this winter has been horrible. I know I've read other threads on here about cold weather being hard on rsd but I was wondering if anyone has the same problems I've been having. When it's cold outside, fifties or colder my joints lock up so much more! It doesn't matter what I have the temp inside. Since winter has started this year I have gotten much! Worse and has spread a lot. I was just wondering if anybody else has these type of symptoms? I can take a hot bath and get some motion back in some of the joints that have recently froze up but within five minutes they are froze back up! Thanks guys and again my best wishes are with all of you all putting up a good fight against this terrible disease.