Smokey, if you have a minute can you talk about your balance problems? The reason I ask is that balance trouble was my first symptom. I would lose my balance while walking and have to take a step sideways to catch myself. It wasn't until this problem got much worse that I realized the trouble is weakness in the muscles in my sides. Now that weakness has progressed to such a degree that when I'm weak, I swing side to side from the waist up when I walk. When I'm really weak, I can't walk at all because I can't hold my upper body vertical.

My neurologist said he's seen 800 myasthenia patients, and none of them walks like me. And yet I often hear MG patients saying they have balancing troubles. Can you tell me what you think is the source of your balance troubles--which muscles are not doing their job? Thanks. Anyone else who has trouble with balance, I'd love to hear your answer to this question. I am still having nagging doubts about my diagnosis, because evidently it's not normal to have MG affect the side muscles so strongly. But maybe it's more common than the doctors realize.

Abby