I'm not sure what my neuro is going to do now. When I went for IVIG I was not in crisis or anything. As for the Mestinon, I felt same way, thought it was doing nothing until I missed a couple of doses. When I miss a dose my right eyelid goes completely closed. So I now know it is doing something.
Mike
Quote:
Originally Posted by Stellatum
Mike, you and I are in the same position. I just finished my first IVIG, too, and for the same reason--to hold me over until the Imuran kicks in (though I may need more IVIG treatments).
Did you say that you didn't notice any improvement from the IVIG? My neuro today told me that almost all of his patients see some improvement, but that he has one who didn't. As for me, I am definitely better--but that might only mean I have overcome my "crash," which is how my disease tends to go, anyway: up and down. So I'm a little discouraged, IVIG-wise, but trying to be patient.
I'm taking the Mestinon, too, but I don't really think it helps me.
Abby
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