Quote:
Originally Posted by keep smilin
Welcome to our family hurts bad.... I am sorry for your DX with RSD and Your pain. I as well as many here, our family are RSD sufferers too. Many of us have had this relentless monkey on our backs for years. We have grown to accept what we can not change but never stop learning and staying hopeful for help and maybe a cure. RSD is so incredibly painful and yes, it can spread. In the early stages, as yours, possibility of better pain coping tools are more achievable and even remission. Please, find a Dr. , paIn specialist or neurologist knowledgable in RSD and move forward, quickly with blocks, medicine, Pt, Most importantly, stay positive as possible. Turn to us for help and lean on us. Please, do not use ice only heat. Our lives with RSD are now different, we no longer are capable of doing things as we were able before our illness took hold but remember what you feel in your heart does not change, stay with us for support.
Take care,
kathy  |
Kathy,
Thank you for the welcome! The doctor that confirmed the RSD (physiologist) is also handling my pain management. I hope that it isn't a very long time before we can get this pain under some control. So far I am taking Vicoden and Lyrica for 2 weeks and have had barely any relief. I went for my PT eval this morning and will be starting therapy this week. It seems like so far I am on track. Whether or not any of this is going to work might be another story. I did see that you mention to use heat not ice, my doctor also recommended that for PT as well. I am very skeptical of this because the warm water when I shower feels like boiling water on my leg where it just feels warm on the rest of my body. I also told the physical therapist my concerns of this because I am scared I won't be able to tolerate it. I have used ice before, of course with no relief, but it was like my leg didn't recognize that it was cold. The doctor did warn me that it can "jump" or spread. I am wondering if you might know, does it take another injury to another part of the body for this to happen or will it "jump" just because it feels like it? Thank you again for welcoming me to the family... Finding this community seems to be the first positive thing that has happened to me in a very long time.
Amy