Jessica, I think it's time to see either a neuro or pulmy who specializes in sleep studies! It sounds like you need a bi-pap or oxygen. Don't assume it's the MG though. Have you ever had your heart checked out?

Yeah, I've had times when I was afraid to go to sleep. If you can prop yourself up or sleep in a recliner, that might help. Try not to get too hot while sleeping.

I think you should call someone in the morning about this. Probably your neuro. It's not exactly normal to have limbs fall asleep at night! I hope you can figure this out and get some help. It's not fun to see sleeping as the enemy but I sure do know how you feel.

Annie