Wow , yes sounds like a thorough work up is needed , I hope they do a good job for you when you go.
It does sound like a reaction of some sort...

It is frustrating that so many drs are specialized and don't even want to look at the whole picture... sometimes the whole picture is needed before narrowing it down to a specialist..

If they don't "find" anything...or can't offer any treatment..

I'll just toss out a few more alternative options that you might want to think about & explore

naturopathy
homeopathy
reflexology
acupuncture
hypnosis
Reiki


[Mind-body therapies are treatments that are meant to help the mind’s ability to affect the functions and symptoms of the body. Mind-body therapies use various approaches including relaxation techniques, meditation, guided imagery, biofeedback, and hypnosis. Relaxation techniques can help alleviate discomfort related to chronic pain.]
http://www.webmd.com/pain-management...native-therapy