Thread: Possible MG
View Single Post
Old 03-08-2011, 01:48 PM
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default

Hi, and welcome. I hope you get some answers soon. I have some statistics for you that I hope will give you a better feeling for what you're up against.

People with ocular myasthenia have negative blood tests more than people with generalized (whole-body) myasthenia do. Here's one link that says that only 70% of people with ocular myasthenia have positive blood tests:
http://myasthenia.puhs.org/drspector_ocularmg.html .

I have generalized myasthenia, and have tested negative for the AChR antibodies three times (and negative for MuSK and LEMS antibodies once each). I finally got diagnosed by a Single Fiber EMG.

About 50% of people who start with ocular myasthenia end up with generalized myasthenia: http://www.ncbi.nlm.nih.gov/pubmed/12580710

Don't be discouraged by the tough stories you read here. I think that people who have the disease well under control, or in remission, naturally drift away from forums like this, simply because MG isn't such a big part of their lives any more. So you might get the wrong impression from us--we're the ones who are struggling. And feel free to ask questions. We're so grateful for what we've learned from each other, and for the support we've gotten, that we're eager to help in any way we can.

Abby
Stellatum is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Marin826 (03-11-2011), n8swife (03-08-2011), pingpongman (03-08-2011)